Essay --

Hutchinson-Gilford Progeria Syndrome Progeria or HGPS is a r are and fatal genetic condition characterized by an appearance of accelerated aging in children. This disease views approximately 1 in 4-8 million newborns with an estimated 200-250 children living with Progeria worldwide. It affects both sexes equally and all races. Children who are born with Progeria may not exhibit symptoms until the first year of aliveness often characterized by growth failure, loss of body fat and hair, aged-looking unclothe and stiffness of joints. As children get older some of the many another(prenominal) conditions they patronage from are osteoporosis, generalized atherosclerosis, cardiovascular disease and stroke. Many to all children modify by Progeria die of atherosclerosis at an average age of thirteen (Proc Natl Acad Sci U S A, 2012) ( The Progeria Handbook A Guide for Families and health condole with Providers of Children with Progeria, Chapter 3, 2010.)A student with Progeria would qualify as an OHI under IDEA because they would set about limited strength due to their small stature and bone afflictions. get-up-and-go and/or alertness would also be affected because many students tiret have enough stamina for a full enlighten day without rests. Students are also at a greater luck for heart complications and other health emergencies that may take in proper observe throughout the naturalise day by a caretaker. All of these and many more issues are due to their chronic health problems which adversely affect the pupils educational performance (Parent Information Network, 2008) (Proc Natl Acad Sci U S A, 2012) ( The Progeria Handbook A Guide for Families and Health Care Providers of Children with Progeria, Chapter 3, 2010) ( The Progeria Handbook A Guide for Families and Health Care Pr... ...gns of stroke, heart failure, or what to do in the case of a seizure. This culture will be invaluable in the case of an emergency. In addition, students with Progeria may be on many medications, the school nurse as well as other staff need be aware of this and their possible side effects. All of this and much of the information above need to be included in the childs IHCP. Although this disease is rare its not impossible to be approach with a child whom is afflicted with proper parent and staff communications the child can have a positive and accomplished discipline experience (Ihcp - individualized, ) (Individual health care, ) ( The Progeria Handbook A Guide for Families and Health Care Providers of Children with Progeria, Chapter 3, 2010) ( The Progeria Handbook A Guide for Families and Health Care Providers of Children with Progeria, Chapter 16, 2010.)